Euthanasia Guidelines in the Netherlands

    Holland has allowed doctors to end the lives of their patients
under various guidelines and regulations since the 1980s.
The most recent codification of the law was in 2002:
Termination of Life on Request and Assisted Suicide (Review Procedures).
These regulations and procedures are summarized here.
Links are provided to complete explanations of each safeguard.



1. Requests for Death from the Patient
must be voluntary and carefully considered.
A written request from the patient is much preferred,
which leaves a good record of when the requests were made.
The request should be made some time before the euthanasia is carried out,
altho no specific waiting period is required.

    Care should be taken to make sure that there is no undue pressure
from anyone to choose euthanasia prematurely.

    The requests for death must not be given with impaired capacity.
In case of doubt, a psychiatric consultation is generally required.
If the patient is demented or has some other mental disorder,
no informed consent can be given.
But this does not rule out euthanasia entirely,
if there was some record of a voluntary and careful request
at some earlier time when the patient's thinking was not impaired.
This might have taken the form of a general request for death
included in an Advance Directive for Medical Care.
However, if the patient is severely demented or unconscious,
these might not considered to be conditions of suffering
sufficient to justify euthanasia.
Pain relief and sedation should be sufficient.
(See other methods of managing dying at the end of this file.)

    However, in practice, the patient is not required
to be completely competent up until the very last moment of life.
The disease or any medication used
might result in impaired capacity at the very end,
but this will not invalidate earlier decisions for a reasonable death.

    The purpose of obtaining careful and consistent
requests for death from the patient
is to clarify and evaluate the basic reasons for choosing death.



2. The patient must have unbearable suffering,
with no prospect of improvement.

    The suffering is the subjective experience of the patient,
but it must seem intelligible to the physician,
who will report that the suffering was unbearable
to the Regional Review Committee.
In practice, the suffering must be conscious.
This means that patients already in a terminal coma
would not qualify for euthanasia
.
But any signs of suffering can be taken into account,
even if the patient can no longer articulate the suffering.

    The suffering must be hopeless or with no prospect of improvement.
This generally means that palliative treatments have already been tried.
And the palliative care has not sufficiently relieved the symptoms.
However, palliative care is not required
as a condition for being granted euthanasia.
In other words, the patient can refuse comfort care,
thereby creating unbearable suffering,
which then qualifies for euthanasia.

    The patient's suffering need not be from a single cause.
Everything that the patient perceives as a form of suffering
should be taken into account.



3. The doctor must inform the patient
about the medical situation and prospects.
The decision to end the patient's life must be well-based in medical facts.
And the patient must give fully-informed consent to the plan for death.



4. The doctor and the patient must be convinced there is no reasonable
alternative to euthanasia or physician-assisted suicide.
This includes discussion of medical treatments that might still be tried.
Palliative care should also be explored.
Such discussions might result in a well-informed consent for euthanasia.



5. The doctor must consult with at least one other independent physician,
who has examined the patient and given his or her opinion
about the four criteria above.

    The purposes of this consultation are several:
The consultant will see if the diagnosis and prognosis were correct.
Have alternative treatments been adequately considered?
Were the prior efforts at cure reasonable?
Has palliative care been provided?
Do both doctors understand the procedural requirement for euthanasia?
In the second doctor's opinion, is euthanasia a valid choice?
Will they cooperate in fulfilling the reporting requirements?

    Ideally, this consulting physician should visit with the patient at least twice:
The first visit should take place while the patient can still communicate.
The second visit can take place after the suffering has become unbearable.
This might be the occasion for choosing the date of death.

    It is even better if the consultant is a doctor
who has been especially trained to deal with cases of euthanasia.
These doctors produce better reports of their cases.

    If one doctor called in for consultation
does not agree that euthanasia would be the best choice,
the first doctor can seek another consultant.
But if the second consultant also does not agree,
the euthanasia should not go forward.
This is the position of the Dutch Medical Association.



6. The doctor will terminate the patient's life with due care
or provide the means for the patient to terminate his or her own life.
It is generally expected (but not required)
that the doctor be the primary-care physician.
But the doctor who provides help-in-dying
must have some meaningful medical relationship with the patient
besides being the provider of euthanasia.
And the doctor is generally expected to remain at the bedside
until the patient is dead.



7. The doctor reports the case to the municipal pathologist,
who must respond in order for burial or cremation to go forward.



8. The doctor reports the euthanasia to the Regional Review Committee.
This committee
consisting of a doctor, a lawyer, and an ethicist
might find a violation of procedure,
which could result in professional disciplinary action
or even prosecution for a crime.

    In the first decade since the new law was enacted,
no doctors have been recommended for prosecution
for not being careful enough in their practice
of providing either euthanasia or physician-assisted suicide.
As of 2018, about 5% of all deaths in Holland
result from such help from a doctor.



    A form has been developed,
which covers all the essential points required for reporting euthanasia.
Occasionally the Regional Review Committee
will ask for more information about a specific case.

    For example, the report-form asks about discussions with others:
family, friends, nurses, etc.
Such discussions are not required, but when they did take place,
responses from others should be included in the final report.

    The patient must be 18 years of age or older.
Younger patients must get cooperation from parents or guardians.
Defective newborns obviously cannot give consent to anything.
Life-ending decisions for infants and other children
fall under other regulations.

    Originally foreigners were not permitted to go to Holland for euthanasia.
But the official website was changed in 2018
to reflect the fact that the 2002 law does not prevent foreigners
from establishing relationships with Dutch doctors
as described above.

    Not included: terminal illness.
Dutch law does not require the patient to be terminally ill
in order to qualify for help in dying.
It is only required that the patient be suffering unbearably.
Patients who are merely tired of living do not qualify.
But this expansion of the right-to-die is being discussed.

    Not included: the suffering must have a physical basis.
In other words, psychological suffering alone could qualify.

    This summary is based on Euthanasia and Law in Europe.
(Scroll down to the second book in this bibliography.)



IN SUMMARY
DUTCH SAFEGUARDS IN ORDER OF IMPORTANCE:

B. REQUESTS FOR DEATH FROM THE PATIENT


G. UNBEARABLE SUFFERING

D. PHYSICIAN'S STATEMENT OF CONDITION AND PROGNOSIS

E. INDEPENDENT PHYSICIAN REVIEWS THE CONDITION AND PROGNOSIS

J. INFORMED CONSENT FROM THE PATIENT

C. PSYCHOLOGICAL CONSULTANT EVALUATES
     THE PATIENT'S ABILITY TO MAKE MEDICAL DECISIONS

A. ADVANCE DIRECTIVE FOR MEDICAL CARE

I.   PALLIATIVE CARE TRIAL

U. WAITING PERIODS FOR REFLECTION

      INFORMATION ABOUT PALLIATIVE CARE
      AND OTHER ALTERNATIVES TO DEATH


N. STATEMENTS FROM FAMILY MEMBERS
     AFFIRMING OR QUESTIONING CHOOSING DEATH

     THE PATIENT MUST BE AN ADULT

H. UNBEARABLE PSYCHOLOGICAL SUFFERING

    By this count, there are 13 safeguards in Dutch law
concerning euthanasia and physician-assisted suicide. 
The above prioritized list
has letters used in the list of 26 recommended safeguards.
They retain their original letters from that list.
And two of the safeguards have no letters,
because these are additional, possible safeguards.
Here is the complete list of proposed safeguards:
https://s3.amazonaws.com/aws-website-jamesleonardpark---freelibrary-3puxk/SG-CAT.html




OTHER LIFE-ENDING DECISIONS BY DOCTORS
THAT ARE PART OF NORMAL MEDICAL PRACTICE


    In Holland only about 4-5% of all deaths
come under the safeguards described above
for euthanasia and physician-assisted suicide.
Many other life-ending decisions are considered normal medical practice,
which are governed by medical ethics
but do not fall under the euthanasia law
:
(1) increasing pain-medication,
(2) terminal sedation,
(3) withholding or withdrawing all curative treatments,
(4) withholding or withdrawing life-supports,
(5) medical dehydration.

    All of these actions (or withholdings) must be ordered by a physician.
Such life-ending behavior might be crimes if done by laypersons.
And all of them take place under medical care,
usually in a health-care institution such as a hospital or nursing home.

    In most cases, the doctor who orders these changes
will consult with the family (perhaps even the patient)
to obtain the consent of everyone legitimately involved.
Sometimes the patient is mentally able
to agree with these life-ending decisions.
And in cases of medical futility,
the doctor can order withdrawal of useless medical treatment
even without agreement from the patient and/or the family.

    Some combination of these life-ending decisions takes place
in about half of all deaths in the Netherlands.
But doctors need not consult with anyone about such choices.
And no special reporting is required.
The resulting deaths will be recorded as natural deaths
due to the underlying illness or condition of the patient.
And they do not fall under the Dutch law
concerning euthanasia and physician-assisted suicide.

    In many cases, the withdrawal of such medical treatments and supports
takes place only in the last few days of life.
When the patient's death is clearly inevitable,
then further medical measures will only prolong the process of dying.




    Here is a 40-page document created for Dutch physicians,
explaining how to apply each of the safeguards mentioned above:
http://www.worldrtd.net/sites/default/files/newsfiles/rte-code-ofpractice-engels-def.pdf
This document includes as an appendix the complete text
of the 2002 right-to-die law for the Netherlands.

    Everything in this presentation is subject to revision
if someone has studied the guidelines in the original Dutch
and/or who knows the current practices in the Netherlands.


Created March 25, 2012; Revised 3-29-2012; 3-30-2012; 5-6-2012; 4-24-2013;
4-29-2015; 8-24-2016; 8-9-2017; 4-24-2018;



Go to a listing of safeguards used in other places:
Safeguards as Found in Various Laws and Proposed Laws.


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