SAFEGUARD G FOR LIFE-ENDING DECISIONS

UNBEARABLE SUFFERING

    When thinkers and legislators try to imagine the circumstances
that would lead them to choose death for themselves
and/or for the people they love most deeply,
they sometimes use the expression "unbearable suffering".
This is a short, evocative term, easy to include in legislation.

    But the facts behind this safeguard are not abstract and general.
Rather, "unbearable suffering" points to situations of persons
who have some disease or condition that causes great pain.
Furthermore, all medical attempts to relieve this physical suffering
have been insufficient and unsatisfactory to the patient.

    Unbearable physical suffering is never the beginning condition.
Rather, only after applying the very best in pain-relief
should any patient and/or group of proxies conclude
that the suffering of the patient has become unbearable.
Thus, this safeguard should be said to be fulfilled
only after a palliative care trial.

    Good pain-control can make the suffering manageable.
The patient and/or the proxies are able to agree
that some level of meaningful life is still possible
when the best methods of pain-relief are being used.

    However, in some cases, especially if the disease is progressing,
even the best pain-relief proves to be unsatisfactory.
Perhaps the pain-medication can prevent most conscious suffering.
But the pain-and-medication cycle renders the patient so incapacitated
that the patient can do little else with his or her life
than wait for the next return of the pain when the medication wears off.
And increasing levels of the same medication are often needed
in order to attain the same degree of relief.

    If the whole focus of the patient's life is more pain-relief,
how long should the patient tolerate that existence?

    Another method of coping might have been giving enough medication
to render the patient unconscious most of the time.
And when consciousness does return for a few moments,
all the patient wants is more relief from the pain,
even if this means becoming unconscious once again.

    If the patient must choose between existence with pain
and unconsciousness without pain,
this might be a sufficient reason to choose death
instead of continuing an existence alternating between pain and sleep.

    Sometimes the unbearable suffering becomes so great
that the patient, the proxies, & the doctors agree
to keep the patient unconscious until death comes.
This is called "induced terminal coma".
Putting the patient in a coma is a life-ending decision
recognized as a legal option wherever modern medicine is practiced.

    Because physical suffering is largely subjective,
there can be no proof of pain provided by others.
But the relevant medical experts can testify
that such-and-such conditions usually are very painful.
And if the patient consistently says that he or she is in pain,
the patient should be believed.

    When unbearable suffering is a reason for choosing death,
it will be mentioned and described in the patient's requests for death.

    When all relevant facts and opinions are weighed and evaluated,
when a palliative care trial has been undertaken,
if the patient and/or the proxies conclude
that death at a chosen time would be better than
continuing unbearable suffering resulting in death at some later time,
then this safeguard for choosing a wise death has been fulfilled.

    Unbearable suffering sometimes makes choosing death the best option.




HOW UNBEARABLE PAIN AFFIRMED BY THE PATIENT
DISCOURAGES IRRATIONAL SUICIDE
AND OTHER FORMS OF PREMATURE DEATH


    We know that some people do commit irrational suicide
as the result of untreated pain and suffering.
So everyone evaluating the pain suffered by the patient
should be aware of the possibility that the patient might choose suicide
if he or she does not get adequate pain-relief from the doctors. 

     But if after all reasonable methods of treating the suffering
prove to be unsatisfactory to the patient, then all concerned can be assured
that treating the pain has been tried and that it did not work well enough
for the patient to decide to tolerate an acceptable amount of pain.

    In short, the chosen death will not be premature
if all appropriate methods of dealing with the suffering have been tried.
If intolerable suffering is all this patient will ever have until natural death,
then reasonable persons can cooperate in a wisely-chosen death.
Such chosen deaths should never be called
"suicides", "mercy-killings", or "premature deaths".
Choosing death in order to end unbearable suffering is
voluntary death, merciful death, and/or a timely death.



Created January 31, 2007; revised 3-15-2008; 3-26-2008; 2-6-2010; 5-9-2010; 9-9-2010;
5-27-2011; 12-15-2011; 1-29-2012; 2-11-2012; 3-22-2012; 8-1-2012; 8-19-2012; 11-6-2012;
5-22-2013; 6-26-2013; 2-19-2015; 5-19-2015; 3-15-2018; 6-5-2020;



Suffering that the patient finds intolerable and that cannot be relieved
is a valid reason for choosing death.
This is Safeguard G in How to Die: Safeguards for Life-Ending Decisions:
"Unbearable Suffering".



Go to the Catalog of Safeguards for Life-Ending Decisions



Go to the list of 26 recommended safeguards.



Go to the index page for the Safeguards Website.



Go to the Right-to-Die Portal.




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