SAFEGUARD FOR LIFE-ENDING DECISIONS

KEEPING GOVERNMENT OFFICIALS, THE MEDIA,
& OTHER STRANGERS OUT OF THE LOOP

    Planning for death is a very private process
conducted by the patient and his or her close relatives, doctors,
& other advisors chosen by the patient and/or the proxies.
All safeguards found appropriate for each patient define exactly
which persons will be involved in the death-planning process.

    All other persons, organizations, agencies of government, etc.
are explicitly excluded from the process.
The only exception to this exclusion is the prosecuting authority.
If some crime might have been committed
disguised as making legally-permitted end-of-life choices,
then the prosecutor has the authority to investigate fully
without any limitation concerning who may be questioned
or what documents may be examined.

    In other words, each and every individual who has access
to the facts and documents for planning a particular death
has an explicit reason to be involved.
When clergy-persons and ethical consultants are invited to participate,
they have been explicitly authorized by the patient and/or the proxies.
No self-appointed guardians of the dying
have any right to interfere in the process of planning for death.

    The formulation of how the various safeguards should be fulfilled
is open to everyone, for example on the website you are reading.
This is the meaning of "public safeguards".
However, the documents showing the fulfillment of safeguards
for a specific death are private information,
available only to those who have a legitimate right to know.
The same laws that apply to medical records
apply to death-planning records.
All such records are not open to public examination.
They are not available to the news media.
They are not available to any public official,
with the exception of the prosecutor, as noted above.

    The reasons for keeping all strangers out of the loop are self-evident.
But it will do no harm to make these reasons explicit here.
Individuals who see themselves as guardians of the dying
have their own ethical agendas,
which may or may not be the same as the ethical principles of the patient.
If the death-planning records were public information,
then such strangers would be involved full-time
in examining records and attempting to intervene
in those deaths they believe would be inappropriate.

    The news media should not have access to the death-planning process
because that would only inflame passions on all sides.
It would encourage people who know only what is reported in the media
to form opinions about what should be done in the cases reported.
This would enormously complicate what should be
a private process of making end-of-life medical decisions.

    Government officials should be excluded from the death-planning process
because they also apply preconceived principles of right and wrong.
And they might try to use the various powers that come with their offices
to influence the choices being made by the duly-authorized deciders.

    A major fear based on the Nazi example
is that government power will be misused to put certain persons to death
without regard to what is best for the patient
and without regard to what the proxies decide.
Government bureaucrats must never become involved
in deciding who lives and who dies.

    The 2005 example of Terri Schiavo in Florida shows what can happen
when government officials interfere in private medical decisions.
The governor of Florida, the Florida legislature,
and then the U.S. Congress and the U.S. President all took various actions
attempting to make medical decisions for Terri Schiavo.
Later her autopsy proved that she was in a persistent vegetative state.

    Millions of people were inflamed by reports in the mass media.
And many people took sides without knowing all the medical facts.
Such strangers should never become involved in private medical decisions.

    Barring government officials from attempting to make medical decisions
—including life-ending decisions—will prevent similar controversies.
If additional laws are needed to protect patient privacy,
let them be enacted at all appropriate levels of government.
Government officials should not only be
prohibited from asking for private medical records,
but perhaps they should be punished for any actions they take
that are intended to influence private medical decisions.




HOW EXCLUDING STRANGERS
FROM THE DEATH-PLANNING PROCESS
DISCOURAGES UNREASONABLY-PROLONGED DYING
AND PREVENTS GOVERNMENT-ORDERED DEATH.


    Keeping strangers out of any process for making medical choices
will simplify every such effort to reach a reasonable decision.
The persons legitimately involved in the decision-making process
will not have to fear that their choices will be reviewed by strangers,
who might have some ethical or political agendas
at odds with the basic purpose of making medical decisions.

    In totalitarian countries where there might be a legitimate fear
that the dictator will order some 'useless eaters' put to death,
keeping all medical records out of government hands
will prevent bureaucrats from choosing who will die.

    In the USA prohibiting and punishing the efforts of government officials
to interfere in the private medical decisions of any family
will prevent repeats of the Terri Schiavo conflict.
In the United States the only officials who might review any case
are the prosecutors and the courts
.
And these prosecutors and judges can only become involved
if any medical decision (including life-ending decisions)
might violate any applicable law then in force.

    Keeping all strangers out of the decision-making loop
will permit patients and their families
to make wise end-of-life medical decisions with complete privacy.



Created March 9, 2007; revised 2-14-2008; 8-28-2008; 9-11-2008; 11-11-2008;
2-12-2010; 5-20-2010; 11-10-2011;
1-12-2012; 1-28-2012; 2-22-2012; 3-22-2012; 8-1-2012; 8-19-2012; 10-18-2012;
5-19-2013; 6-26-2013; 7-23-2014; 11-30-2014; 5-6-2015;
5-1-2017; 1-5-2018; 10-12-2018; 5-21-2020;


The above declaration that end-of-life decisions are private
has become Chapter 23 of How to Die: Safeguards for Life-Ending Decisions:
"Keeping Government Officials, the Media, & other Strangers Out of the Loop".



Go to the Catalog of Safeguards for Life-Ending Decisions



Go to the list of 26 recommended safeguards.
The above safeguard is not one of these named safeguards,
but keeping strangers out of the loop is included in several of them.



Go to the index page for the Safeguards Website.



Go to the Right-to-Die Portal.



Go to the beginning of this website
James Leonard Park—Free Library