Idiopathic Hypersomnia isn’t a very common disorder and many people might not have heard of it until you mention it.
If you have found this short video useful then please share it with your friends, post it to your Facebook wall and email the link to anyone who you wished better understood Idiopathic Hypersomnia. This video will appeal the most to those with an interest in the background behind Idiopathic Hypersomnia and the other related hypersomnias.
Recently an opportunity arose to share a couple of pages about Idiopathic Hypersomnia with NODSS – the Overwhelming Daytime Sleep Society of Australia. Recent work has demonstrated that cerebrospinal fluid (CSF) of patients with primary hypersomnias enhances activity at the GABA-A receptor, and this may be causal to hypersomnia symptoms. We performed a double-blind, crossover trial of clarithromycin in hypersomnia patients with abnormal excess potentiation at the GABA-A receptor (as assayed in CSF).
In this pilot study, clarithromycin improved subjective sleepiness in GABA-related hypersomnia.
This is significant as there is now published research supporting the off-label use of clarithromycin for Idiopathic Hypersomnia. Remember, it is about helping your doctor see the potential in this treatment for improving your quality of life. As of 2013 Idiopathic Hypersomnia (IH) is now becoming known as Major Somnolence Disorder (MSD).

One way that you can help raise awareness about Idiopathic Hypersomnia is through your Facebook profile. Understanding these Myths can help you to deal with it and for others to support you in effectively treating your Hypersomnia.
This short presentation goes through the top seven things you should know about Idiopathic Hypersomnia. The video goes through some of the difficulties that exist with using a Mean Sleep Latency Test (MSLT) to differentiate between the different Hypersomnias.
Raising awareness of Idiopathic Hypersomnia is a big job and each extra person who becomes aware of it brings us a step closer to proper awareness and recognition of this disorder. Oral GABA-A receptor antagonists, such as the macrolide antibiotic clarithromycin, may therefore be effective hypersomnia treatment. Telling friends and family that we have Idiopathic Hypersomnia is hard enough, without the often blank stares that follow. If your peer, friend or fam Read More Idiopathic Hypersomnia TreatmentsThere are many different approaches to treating Idiopathic Hypersomnia (IH).
It provided a general overview of Idiopathic Hypersomnia, including the primary symptoms and traditional treatments. Subjects were evaluated using the psychomotor vigilance task (PVT) and subjective scales (including the Epworth and Stanford Sleepiness Scales, the Functional Outcomes of Sleep Questionnaire (FOSQ), and the SF-36) at baseline and during each treatment period.

Diagnoses included idiopathic hypersomnia (n = 11), narcolepsy without cataplexy (n = 4), and hypersomnia with long sleep but normal MSLT (n = 5). Clarithromycin does not represent a cure to Idiopathic Hypersomnia, but it does represent another treatment option that has the potential for significant improvement. In the medium term if this treatment works for you then you want to request your doctor checks your liver enzymes after 2 months of use, and then approximately every 6 months after that. As each person can respond differently it is normal for different treatments to be trialed until a treatment is found that Read More Idiopathic HypersomniaHypersomnia (sometimes referred to as hypersomnolence or non-REM narcolepsy) is a disorder characterized by excessive sleepiness, extended sleep time in a 24-hour cycle, and the inability to achieve t Read More Support For Those With HypersomniaThe support that is available to sufferers of Hypersomnia varies greatly from country to country. It also introduces the more recent research and possible future treatments such as flumazenil and clarithromycin.
Idiopathic Hypersomnia is a very real neurological condition and the more that it is talked about the greater public awareness will be.

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Comments Treatment of idiopathic hypersomnia

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    (ESS), Functional Outcomes of Sleep measured without having a warm shower or bath.