For five years, the REM Runner blog has offered hope, inspiration and awareness tools for the narcolepsy community. People with narcolepsy often feel lost and alone, until they find this unique and positively-spirited website. For children with narcolepsy to stand tall and proud, knowing they’re overcoming adversity and going to succeed in life. Narcolepsy is a neurological autoimmune sleep disorder in which the brain loses the ability to maintain normal sleep and wake states. Julie Flygare, JD is the founder of Project Sleep, a narcolepsy spokesperson and published author diagnosed with “narcolepsy with cataplexy” in 2007, in her second year of law school. Upon recognizing that many doctors were unfamiliar with narcolepsy, she collaborated with Harvard Medical School researchers in 2009 to establish a 5-hour educational program based on her story now taught to all Harvard Medical School students. In 2009, Julie came out publicly as a person with narcolepsy when she published her first “REM Runner” blog about living and running with narcolepsy. In 2012 – 2013, Julie successfully led national efforts to secure narcolepsy’s place in FDA’s Patient Focused Drug Development Initiative. Recognizing that many people with narcolepsy feel lost and alone, Julie established the NARCOLEPSY: NOT ALONE international awareness campaign in 2013, collecting over 1,200 photos from all 50 US States and 44 countries around the world.
Recently, Julie successfully petitioned Honda to remove an advertisement with an offensive narcolepsy reference, and turned this into an awareness opportunity, working with Honda to create a narcolepsy PSA airing on national TV.

Podcast: A conversation about narcolepsy, Homer Simpson, memoir writing and marathon running. Cataplexy is a sharp misfortune of voluntary muscle tone, typically triggered by enthusiastic arousal. Narcolepsy, or an inclination to it, is normally an inherited condition, yet has happened after head harm or mind harm created by extreme contamination. Narcoleptics normally have the ability to control the side effects with sufficient prescription and right eating methodology. Despite the fact that there is no known cure for narcolepsy, some solutions assistance to control the indications. As an active runner, yogi and outspoken advocate, I try to highlight the highs and lows of living and running with narcolepsy – from collapsing to the ground to speaking across the country. On April 19, 2010, she took on one of the greatest athletic challenges of her life, running the Boston Marathon to raise funds for narcolepsy research at Stanford and Harvard. Staying up to date on health technology trends, Julie created the first-ever narcolepsy mobile app, awareness video series and infogrpahic to empower advocates with essential communication tools. Project Sleep hosts the national SLEEP WALK event series and the Jack & Julie Narcolepsy Scholarship, the first-ever scholarship for students with narcolepsy.

The primary manifestations are over the top daytime sluggishness (EDS), cataplexy (misfortune of muscle tone), hypnagogic pipedreams, disturbed evening sleep and immediate conduct (being unconscious of what you are doing).
Driving or working hardware, while perilous for untreated narcoleptics, ought not be an issue if pharmaceutical and eating methodology calendars are stuck to. In a few cases certain antidepressants taken at time to hit the hay may be obliged to support in control of cataplexy.
Narcolepsy side effects fluctuate from individual to individual, as does reaction to meds; additionally both indications and reaction are prone to change at distinctive times in life. The drugs used to control narcolepsy are generally exceptionally accommodating yet may cause some reactions. Narcoleptic sleep ambushes are thought by a few powers to be the wrong presence of REM sleep.

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