For a list of Doctors that others have found helpful with their Hypersomnia visit our Doctor Directory.
Alcohol – It is generally recommended that people suffering from Hypersomnia avoid all alcohol. Amphetamine — This is one of the more successful stimulants for treating Idiopathic Hypersomnia. Antidepressants – Antidepressants can be used to supplement other treatments for Idiopathic Hypersomnia.
Caffeine – It is generally recommended that people suffering from Hypersomnia avoid all caffeine.
Counseling – Many people who are diagnosed with Hypersomnia will need to make significant life changes to effectively manage their health. Levothyroxine – Studied on a small number of patients in Japan this Thyroid medicine was found to reduce sleep time in Hypersomnia patients with normal thyroid results by an average of four hours per day. Lifestyle Changes – Lifestyle Changes are a common starting place for a sufferer of Hypersomnia.
Modafinil – Modafinil is an analeptic drug commonly prescribed for Hypersomnia as well as narcolepsy, excessive daytime sleepiness (EDS) and shift work sleep disorder.
Thyroid Medication– Thyroid Medication is highly recommended for those suffering a thryoid issue as many symptoms of thyroid problems can be similar to those of Hypersomnia.
Weight Loss – Many sufferers of Hypersomnia will gradually increase in weight over time due to inactivity and a tendency towards high calorie food such as chocolate. Note that we have a mitochondrial disease variety, which may be responsible for the hypersomnia. I am taking Ritalin and Provigil for IH and if I take these medications 5 or 6 days in a row they become less effective to a point where when I increase dosage to make up for the tolerance built up they stop to work altogether.
I don’t know that anything that I have said has help but maybe rethink or consult a doctor in other things outside of just prescribed medication you can do and best practices for using prescriptions. I have been on Adderall for almost 16 years since going through all the other medications that have been available. I was signed off work whilst i was pregnant as I was unable to take the medication and therefore unable to stay awake. I am trying to get a further review at the sleep clinic to see if I am able to try other medication. First, you need to make sure that excessive sleepiness or hypersomnia is, in fact, a result of TBI before deciding on appropriate treatment.
There are many reasons that people can be excessively sleepy and post-traumatic hypersomnia is really a diagnosis of exclusion; that is, one needs to make sure that all other conditions are adequately assessed for and ruled out before assigning a diagnosis of post-traumatic neurogenic hypersomnia. Hypersomnia may seem very similar to narcolepsy because the affected person has an overwhelming urge to sleep without any apparent reason. Proper diagnosis of the condition is the key to getting proper treatment and ruling out other disorders is an important part of the process. The doctor conducting the study should be aware of any medications the patient is taking since some prescriptions can interfere with the polysomnogram. Little is known about the prognosis for patients with idiopathic hypersomnia because the condition is so rare. As each person can respond differently it is normal for different treatments to be trialed until a treatment is found that works well for the individual.

Many of the descriptions have been provided by volunteers who suffer from Hypersomnia and they are anecdotal in nature only. Antidepressants work by effecting some of the same neurotransmitters effected by the normal stimulant treatments. It is sometimes used by people with Idiopathic Hypersomnia who either struggle to sleep at a normal time or for those who struggle to stick to a normal schedule. It helps with excessive daytime sleepiness for some people with Hypersomnia by allowing the patient to receive more restful and deep sleep during the night.
Two studies have been done in Japan where Thyroid Medication has helped alleviate symptoms of Idiopathic Hypersomnia in those with a normally functioning thyroid.
The reverse may also be true for those on many of the medications as stimulants will often reduce appetite and increase metabolism which leads to weight loss.
I dont seem to be able to kick that now that i have returned to the medication and re-started work. When stronger pharmacologic agents are necessary, then stimulant-type medication such as amantadine, armodafinil, atomoxetine, or controlled substances such as psychostimulants are often prescribed. The Content is not intended to be a substitute for medical, legal, or other professional advice, diagnosis, or treatment. When a person has hypersomnia they may, over time, experience significant problems including memory loss, anxiety and low energy. Not having a cause can lead to problems because the cause of a medical condition is usually what helps doctors to develop treatment plans.
However, people with idiopathic hypersomnia do not experience sudden loss of muscle and they do not involuntarily fall asleep. Patients with idiopathic hypersomnia fall asleep quickly but they do not automatically fall into the REM stage as frequently as individuals with narcolepsy do, according to the National Institutes of Health. Patients taking certain medications may have to stop before participating in the sleep study. According to the National Institute of Neurological Disorders and Stroke, treatment for the sleep disorder is "symptomatic in nature." Approaches include using stimulants or other medication to counteract the excessive daytime sleepiness.
Some of the medications used as a hypersomnia treatment for the daytime sleepiness are associated with other sleep disorders.
A study from the Respiratory Support and Sleep Centre in Cambridge, United Kingdom found that people with idiopathic hypersomnia respond favorably to treatment, and in some cases, the condition improves without treatment. The possible causes of Hypersomnia are poorly understood so treatment normally focuses on reducing the symptoms for the individual. It is fair to say that for every treatment below there are suffers of Hypersomnia who have had little or no results from that treatment (See one IH sufferers opinion on IH Treatments by clicking here). Because of this relationship, there is a high incidence of depression among people with Idiopathic Hypersomnia.
It is thought to act on the GABA pathway that Emory University researchers believes to be behind the sleepiness for many patients with Hypersomnia. Published research from Emory University (Georgia, USA) and Fresh Start Clinic (WA, Australia) has shown that chronic dosing of Flumazenil can be effective as a treatment for patients with Idiopathic Hypersomnia. For those suffering more extreme Hypersomnia, especially when they are sleeping upwards of 16 hours a day, many of these lifestyle changes are near impossible. Anecdotally these guidelines will make little to no difference for people with Idiopathic Hypersomnia.

Further research is needed in this area before Thyroid Medication is regularly prescribed by doctors for those with normally functioning thyroids. Water consumption is especially important for those on medication to aid with properly expelling the waste from the body. Depending on the severity of the Hypersomnia exercise is often not possible so Weight Loss is best approached from the perspective of nutrition.
Similarly, if you notice an inaccuracy of have experienced an adverse reaction to a Treatment above then leave a comment below so that others can benefit from your experience. I think it would be for normal people, because it can be like speed but for people with hypersomnia it just makes them have a normal level of alertness.
Though there is no cure for the condition, patients may find relief using lifestyle changes and medication. At the time of writing a reliable cure is unknown and one or more of the below treatments will likely remain part of a Hypersomniacs life indefinitely. This list is provided with the hope of starting conversations with your doctor about possible treatments that can help you.
Note – weight gains could also indicate hypothyroidism which can be investigated with your doctor as it shares many similar symptoms to Hypersomnia.
I now have a wonderful career that I do not want to lose, so I am finally getting treatment. It might pay to find a good psychiatrist who can help with your treatment plan as they often understand the drugs much better and can more confidently prescribe them for you.
Non-restorative sleep patterns like obstructive sleep apnea or restless leg syndrome can produce hypersomnia. This medication can decrease appetite and may also speed up metabolism, facilitating weight loss. At this time this treatment is one of the most difficult to access, although it is becoming easier as more patients have success with it. Some people find the short acting version of methylphenidate a good addition to other extended release medication like Modafinil, Armodafinil or Dextroamphetamine. Talk to a MD who won’t claim that only medication can assist and not lose a license to practice, because thats only what its come down to. I hope that scientist and doctors will realize how important it is and try harder to find a better treatment or cure.
Due to the cardiovascular risks and uncomfortable side effects sometimes associated with this medication it is not suitable for everyone.
There can also be side effects when stopping this medication, including suicidal thoughts and increased appetite so always consult with your doctor when modifying your dosage. Herbs are medication made by mother nature and can still mess you up in refined and combined forms and can rarely be taken for long periods.
If you are still actually falling asleep while driving, you definitely need to change your medication.
You might be getting all the medication you need from the tap water, if you know what I mean.

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