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27.05.2014


Down syndrome, but every situation and every person is so different that the best I can do is tell you my experience. On the day of our sonogram to find out the sex of our very first child, my husband, the two first-time grandmas-to-be and I anxiously waited in the waiting room for my sonogram.
For a mother, it is the worst thing in the world to hear that something may be wrong with your baby. Thank you for sharing your story with me, my friend told me about this website because I just found out that my quad screening came back positive and I have to go for the ultra sound so they can measure the baby’s organs and head and neck.
I just had my 20 week ultrasound, the first of any tests being that I am only 25, and had a normal pregnancy with my first, and no nasal bone was to be seen. I have no expirience of this first hand, Your story is complelling and i was woundering if u would mind me using it and the photos? I’m doing a research on mothers of babies with a syndrome and was hoping you could list positive support you received on your journey and also list negative situations that happened.
All proceeds from the book will be donated to Gifts from the Heart for Downs, a nonprofit organization that grants wishes for people of all ages (OK, 2 and older) with Down Syndrome. I would like to have at least 40 submissions, and my goal is to raise at least $1,000 to fulfill wishes. God Bless you all and remember that your child will always be the most unique person you will ever know. We first had the obligatory weigh-in, blood pressure check, and “how have you been feeling” with the nurse. Through a cloud of tears and emotion, we found out we were having a girl, but no longer was she going to be a mini-McKenna. As soon as I saw her, I knew she had Down syndrome because I had studied every picture of a newborn with Down syndrome that I could find. Are there things my daughter goes through that other little girls don’t have to go through – yes. Not what color hair, eyes, or how tall the child will be but what God wants for us and the child. I also went from why me to why him in so many hours and now 11 hard months on i also wouldnt change him for the world (not even that extra chromosone) he has fought for his life with bronchiolitis and pneumonia due to his 2 big holes in his heart, he had open heart surgery in february which was a huge success and had a stomach peg surgically fitted in july 08 to help his feeding which also has been a huge success and through it all he gives us a smile that would light the room.


I once again recolled my mother.My sister has down syndrome and my mom felt in the same way u felt. I have a daughter with Ds who is about to turn 7 soon and I remember the fears and anxiety when she was first born. I’m 19 years old, and was just informed that my blood test came back positive for down syndrome! I myself just had a beautiful baby boy on the 12th of this month, we were informed 3 or so hours after his birth that he had down syndrome. I kept thinking to myself, “come on already, look between the legs!” The technician then told us she wanted the doctor to look at some things. She has the persistence of a mule (and of her mother), my blonde hair and my father’s hazel eyes.
I am scared but I am also thankful that I have this opportunity to have a baby, my husband and I have been trying for a long time.
Since Carter has came into our family he has made our life so much better and to see that big smile from the cot in the morning makes all the long lengthy hospital visits worthwhile!!
I have 2 beautiful children a son who is 15 and a daughter that will be 2 in November but now I have a baby that could possibly have downs, I’m so scared and all of those same exact feelings have flooded me.
I didn’t have a quad screen or amnio but I did have several sonograms, so I am certain the doctors knew she had Ds.
He does have a rounded face, and a simian crease, but his heart is healthy and his muscles are stong.
He only puts on u as much as he thinks u can handle and I believe he thought u would handle this well. I too am already becoming too close with Google but Im uplifted by your beautiful little girl. She has short stubby toes like my sister and mother and has very straight fine hair like my husband and his family. But at the end of the day, I got more than a mini-McKenna and I wouldn’t change anything about my precious little girl – not even her extra 21st chromosome!  For an exciting update on Down syndrome in our family, click here!! So instead of enjoying this time at the hospital, everyone is staring at him, analyzing everything feature and movement to try to find some answers.


I work with special need children in the school system and would not change my job for the world!!!!
In time the blood work will come back, but right now the new parents are just a mess of emotions, joy over the birth of a child they wanted for 5 years, confusion over what his fate might be.
I elected not to have the additional test done, because either way I will love my little girl regardless of what she may have. She is the best big sister in the world, until her baby brother takes a toy that she wants. I know that children with downs syndrome can live fairly normal lives and that this baby will be loved no matter what, but it’s hard not to worry when it seems something else might be wrong all together.
It takes special people to be with these kind of children and I believe god chooses them wisely. Although we never had the amnio which would have confirmed Down syndrome, the doctors were sure my baby had Down syndrome when they later found a heart defect that is almost exclusive to babies with Down syndrome.
My husband and I held on to the small chance that she didn’t have Down syndrome, but tried to prepare for that possibility.
We went back to the waiting room, and I was still my upbeat perky self waiting for the sonogram tech to call us back. Then it quickly changed to is my baby boy going to be alright, what health problems is he going to have?
I know the road ahead is going to be hard and there are going to be times where i feel like i have failed and want to give up but that will not be an option for me. You have given me hope and reassurance that it will all be okay and that love conquers everything and theres nothing i wouldn’t do for my child.



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Comments »

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