Chances of having a downs syndrome baby at 40 000,can get pregnant 2nd time,could i be pregnant 2 days late - Test Out

Once we finally got pregnant, I had a burst of excitement about finally being a father, the journey ahead and all the dreams I had for him.
Early morning the next day when the doctor told us he had Down Syndrome, I was devastated.  I lost that feeling of celebration. It’s almost been two years now.  And my son has changed my life to be so much better than it was before.
Since he started therapy at 6 weeks old, I’ve seen him work so hard to accomplish what a typical kid can.
In the past year, I’ve accomplished things I had thought were impossible for me: got into the best shape of my life and lost 40 lbs, ran my first half marathon and crossed the finish line with Knightly in my arms, dropped to normal blood pressure and cholesterol, and felt empowered enough to pursue dreams that I had always been afraid of pursuing.
As soon as they’re born, their diagnosis makes people think of all the things they can’t do or be.  To most of the world, my son is expected to lose, not to succeed. I have been blessed to hear so many real life stories of overcoming incredible medical hardships, life and death situations, prejudice, social rejection, achievements and successes that bring me real faith and hope in an amazing future for children like my son. As I learn about the treatment they endure around the world because they are seen as “limited” and “disabled”, I feel called and blessed to be a part of sharing their stories to the world, that they may inspire and change others as they’ve inspired and changed me. We hope each of you are blessed to hear the stories of what these children have overcome and how they’ve changed the world by the age of 2. Weeks later, the hydrops fetalis started disappearing on its own—more and more until it went away. He was born with sensorineural hearing loss, meaning parts of the nerves that travel from his brain to his ears were not fully developed.
Since Johnny was in my womb, he has literally survived and surpassed all that has been expected of him. Although these challenges may present themselves as ongoing crisis situations, Zoe has allowed me to embrace crisis in a different way. When I received confirmation of a Down syndrome diagnosis, for a moment I felt like a victim. Thanks to Zoe, I have learned that crisis and blessing are two sides of the same heart held together with love. My husband has been a school bus driver for special needs children for the last 15 years and he had said that the Lord had prepared him for this special gift.
My son who was 15 at the time was so excited because he couldn’t wait to prepare his sister for the Special Olympics in swimming, which was what he did best. Since coming into our lives, my daughter Faith has changed our life forever by bringing us constant happiness. I had a very hard pregnancy but, the moment that little girl came out of my womb, there was a bond that can never be broken. Since we were older, we were excited when we got pregnant.  We wondered about all the wonderful things our son would do and accomplish. It didn’t really matter to us.  We knew God gave us this baby, had a purpose for our little one, and he was going to be a blessing. But when John was born, we were so grateful.  I just kept crying because he was so beautiful and we just loved him.  He was our baby! Then, I started to feel bad for John because of what he may face in school and as he grows up. But then I thought to myself, “Okay, how would I have reacted if I saw someone different?  Perhaps a child with autism or another type of special needs that I didn’t understand?”  I would probably feel a similar way and not know how to react.  That may have been what she was thinking. We’ve faced times of prejudice and rejection similar to that scenario.  And at moments like these, I feel pain.
One of the things that I firmly believe is that we have to treat our kids just like typical kids – same expectations, same boundaries, same love. I know there may be parents out there who just found out their child has Down Syndrome.  I want to share the best words of wisdom I’ve received on this journey.
It has opened the doors to meet people we never would have met, make bonds that will last forever with people in all walks of life.  It has changed us for the better. After being told by the geneticist that our child had a high probability of being born with a severe disability of some kind, we knew the road ahead would be a tough one. Due to Bianca’s rare form of Down Syndrome (her #21 chromosomes are translocated instead of having an extra #21), doctors were unable to determine how the chromosome defect would impact her chances for survival, overall growth and development.
After surgery, she developed a blood clot in her leg and was forced to stay in the hospital days longer than anticipated. When she was released from the NICU, feelings of fear and uncertainty constantly flooded our minds. But today, Bianca continues to amaze us every day as she finds ways to adapt to some of her daily challenges. Bianca has helped reaffirm to us that every life is valuable regardless of the value in which society tries to place upon it. She has an amazing sense of when an unsuspecting stranger is in need of her “Hi!” and huge grin. Beautifully, Bianca has showed us the true power of a smile – and how it can break down even the toughest of men.


He was swimming around completely oblivious to what was happening in the room outside of his comfy, cozy amniotic pool. We were immediately pressured to terminate and told to make the decision right then and there. A man on Facebook asked me, “Can you tell me why having a child with Down syndrome is a blessing? Jaxon is an angel – sent to show what a priceless gift that he and other people with Down Syndrome are to the world. We’re told by people that she won’t be able to do much, to play like other kids, or understand what they’re doing.
And, despite all she’s faced, she constantly proves to everyone around her that there’s nothing she can’t do. Just after the excitement of finding out we were pregnant the second time around, our doctor called to tell me that we had a 1 in 5 chance that our baby would have Down Syndrome. After taking the new Maternity 21 tests and going to the doctor’s office three times to finally do the amniocentesis, all the results showed that our son had Down Syndrome. Then, on July 10, 2012, 4 weeks before Robbie was due, I woke up and saw that I was spotting. The anesthesiologist had me take a deep breath.  And before I even realized it, I woke up and it was the next day.
I was in the room all by myself wondering, “Where the hell am I?”  I tried to get up but felt excruciating pain and screamed.
I was repeatedly being told that I had to calm down first, which only made me feel worse as panic started to rise.  They gave me morphine twice but the pain was still high. I was finally told that Robbie needed special treatment and attention that could only be given at CHOC in Orange. I later learned that Robbie had flatlined for 10 minutes straight before they could get his heart going again. In the meantime, I was in the maternity ward hearing babies crying.  All I could do every second was pray that, when I get to see him, he was going to be alive and that I wouldn’t get a phone call telling me that he’d passed away.
Once I saw Robbie, he was in an isolated room in a clear box with all these machines attached to him helping him stay alive.  I remember talking to the doctor at the NICU to ask how he was doing and if he was going to make it. I understood but persisted to ask if I could just put my hand near him so he could feel my warmth.  The doctor finally allowed me to try just to see how he’d react.
I unwrapped him so that his skin could touch mine and then I held him and just rubbed his little back, telling him it was going to be okay and that he had to learn how to breathe. Having the diagnosis of Down Syndrome is NOT the end of the world, it’s a very small part of who they are. We are proud parents of 9 children: 1 home-grown, 7 adopted, and 1 waiting for us in heaven. On Oct.7, 2012, our precious daughter, Zemirah Joylena, was born 9 weeks early straight into the arms of Jesus. After several precious visits with the birth mother, on January 10, 2013, Simeon was placed in our arms forever. Because Simeon was born with Down Syndrome, God has stirred the hearts of many families to adopt a child with Down Syndrome. At 18 weeks pregnant as we found out the sex of our baby, we were told that Gabe had a life-threatening medical problem of fluid in his brain called Hydrocephalus. And, even if he did make it to term, he would require brain surgery out of the womb, a surgery he also may not survive. In an attempt to learn why Gabe had developed Hydrocephalus we were given an amniocentesis.
Matt and I were already grieving that Gabe may not live at all because of the Hydrocephalus.
As we read up on Down Syndrome, we found out that each child was different and that many grew up, learned to speak, function and have good lives.
When we finally got to meet our little boy, we learned just how precious and perfect he was. On day 6 in the NICU, Gabe also overcame a hole in his heart that miraculously closed on its own. When I first found out I was pregnant, I was 43 years old and I was really not wanting to start all over.
When he was 2 months old, he had to have a trache put in because his trachea was too small and he was having trouble breathing.
In May 2013, he had reconstructive surgery where they took a piece of his rib cartilage and recontstructed his trachea. Every month from May-December last year, we went to the UCI Burn Center to remove scar tissue around his trachea.
Because of him, my husband and I have learned a whole new way to love and appreciate children with special needs. We both ride Harleys and decided to have a fundraiser for the DSALA and bring awareness to DS.


We also started a ministry at our church, Calvary Chapel Montebello: the Calvary Chapel Crusaders for kids with special needs. At just 2 years old, he has already been made an Honorary Teamster Horseman, skateboards with The Skate Connection, and has touched so many lives like ours. But because he is an underdog, he has the opportunity to work hard in life to get to where he can be. I had to let go of the child I thought I was going to have.  For me, I just had to wrap my head around the new normal. I said to my mom, “Why does everything have to be so hard for me?” The diagnosis, similar to the other challenges, was a turning point and a defining moment for me was in Zoe’s eyes.
I am one of the most fortunate people on the planet, (an aspect of motherhood probably not unique to me), who gets frequent reminders to stay present, and to hold the tension of opposites.
The nurse came in and, with no sympathy, told me our daughter had Down Syndrome and handed me a Down Syndrome information book. That may not have been.  But when I take a step back to try to understand the reactions of people like that, it doesn’t necessarily make me feel any better but at least I get it. The list of “she probably won’t be able to…” and “don’t expect her to…” played in our heads. During the ultrasound, they pointed out his heart defect along with other medical issues, but Todd & I just saw our baby on the screen. Having a child with Down Syndrome will soften your heart, allowing you to accept people as they are, regardless of their abilities. When you have a child with Down Syndrome, new people whom you will cherish will come into your life. Last but not least, raising a child with Down Syndrome is wonderful and amazing because having children is wonderful and amazing. There is a deep scar in her lung and an immune system that doesn’t work for her anymore so every time she gets a cold she is at CHOC for 1-2 weeks. Because of all the trauma to his body, all the organs went into survival mode so he got so big and swollen.
An agency had posted on their Facebook wall with an urgent situation of a baby boy who was 7 weeks old that needed an adoptive family immediately.
Following his surgery, he suffered from back-to-back hospital stays with pneumonia and trach infections which led to chronic lung disease. When we returned for the results, there were no answers about the Hydrocephalus BUT that’s when we learned that Gabe also happened to have Down Syndrome. It is a place where one must hold the tension of opposites and the unknown: between death and life, fear and love, crisis and blessing. Having a child with Down Syndrome breaks down social barriers, and you find yourself with other parents, acknowledging that you both have something great to share with each other. But parenting is also eye-opening, life changing, painful, beautiful and worth every minute, and the same goes for raising a little one with a little extra magical chromosome! The birth family had 10 days to meet and choose a family for their baby before their visa was going to expire. Their plan was to take their son home to China with him until the diagnosis of Down Syndrome was confirmed.
But by God’s divine hand, we discovered that our very dear friend was actually translating and representing the birth family.
His lungs continued to deteriorate so we ultimately made the decision to have a fundoplication and g-tube surgery when he was 11 months old to protect his lungs from aspiration. She shared with us, “If I had known that Simeon had Down Syndrome while pregnant, I would’ve no doubt aborted him. God brought people around us after Gabe’s diagnosis who encouraged us and prayed for Gabe to live. But the wait and extra effort make every milestone a cause for celebration – like a World Series win!
They had to give him blood transfusions and several platelets for him because nothing would regulate in body. Because she knew our family personally, she was able to share about us to the birth mother. They had great concern that he would not receive the medical care, therapies, and acceptance he needed if he were to go home with them.
We learned that Simeon has severe obstructive sleep apnea caused by narrow & collapsing airways. To this day, there are people we know who will barely greet her with anything more than a hello.



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Comments to «Chances of having a downs syndrome baby at 40 000»

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