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I've been moved to create awareness tools that help both educate healthcare practitioners and the public about Morgellons Disease (see Awareness Poster) as well as share what I've learned from this experience.Many of the skin photos in the photo galleries are mine. Like most, I panicked bought a lot of unnecessary products—some toxic, then managed to pull myself back from the brink of actually hurting myself. This gave me great relief from the discomfort of what felt like fiberglass embedded in my skin.
That plus coming off the tail-end of the pharmaceutical seemed to stop all the symptoms of itching, biting and crawling for approximately the next 4 months.
The skin however, doesn't lie and told a whole other story for under it's surface, fibers and particles were clearly still present—multitudes of them. Early on, I'd heard about the testing that Pam Crane of Morgellons Focus On Health (site no longer active) was championing and felt that it was probably the way to go.
She sounded like she knew how to do her job well and was more than capable, indeed she had impressed me as understanding how to approach the disease in a holistic manner that aligned with my own healthcare philosophies. Black particles began coming out from the skin, sand-like crystals were suddenly pushing from the scalp, I was itchy and uncomfortable but this time around it was at a much lower volume then at onset.
But it has also left me savoring hard-won battles and set me straight on how to live more in balance.
Therefore, I try not to rail against the unfairness of the experience, but to look at how much I learned and the ways in which it has stretched me as a human being. FOS, according to Nancy can promote yeast growth so I'd stay away from a probiotic that includes it.


I'd look into this as a close friend from the community began taking both high amounts of Vitamin C and NAC and her symptoms disappeared. Once Nancy reviewed my test results and knew how I was responding to the treatment she modified my protocol to include a liver support, and the addition of 3-4 new products that would also help balance me out. Using shea butter and coconut oil mixture as a moisturizer seems to draw fibers and black particles from my skin if left on for 3-4 hours. An acupuncturist, pointed out after looking at my hair photos, that there were multiple "hairs" emerging from one follicle. I'll be taking a prebiotic to address the new bacteria as well as some new products from Xymogen to open detox pathways. The only itching I've got is from the occasional mosquito bite (and yes, these are real mosquitoes).
Note that I have been letting my supplements run out in the last few months because I needed a break from taking approx. I stopped the Ormus because I wanted to document F-6, which has gotten quite a buzz in the Morgellons community. October 17, 2011: Began using F-6 and have started a new link documenting that experience including photos showing what is emerging from the skin. I have since talked with another person that had strong outbreaks from doing an ozone sauna.


This forage into complex carbs was unusual for me.While eating the cookies I started to itch. Will stay on this for a few days and slowly double the dosage, then determine where to go from there. This is encouraging for all of you who wonder how long it will take to knock back candida and even if our protocols are working.
Nancy suggested this organism is a pleomorph moving from bacteria to fungus according to favorable conditions in the body.
Stopped taking thieves after a few weeks but do still take lemon and added in lemongrass and grapefruit to my daily capsule. Itchiness did not return. September 22, 2013 Decided to go on Stephen Buhners herbal protocol for Lyme disease (crafted from his excellent book, Healing Lyme).
On the plus side, I could tell there was a lot of detoxification going on and all of those bitter herbs were really helpful for quelling sugar cravings. I believe I will revisit this protocol modified in the future, but for now, am taking a rest from it. Note that when I ceased treatment, the papercut and pinprick lesions stopped, although I recently had a three-inch long "scratch" appear on my leg weeks after stopping his treatment some weeks back.



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